“The Compassionate Allowances initiative cuts through red tape and allows us to deliver support to individuals who experience life-changing diagnoses and need help fast,” said Commissioner Frank J. Bisignano in the news release.
The newly added conditions include:
Adenylosuccinate Lyase Deficiency, Neonatal Form and Type 1
Aicardi Syndrome
Baraitser-Winter Syndrome
Beare-Stevenson Cutis Gyrata Syndrome
Bohring-Opitz Syndrome
CASK-Related Gene Disorders
Hepatosplenic T-Cell Lymphoma
Lafora Disease
Malignant Migrating Partial Seizures of Infancy
OPHN1 Syndrome
Primary Cardiac Sarcoma
Primary Intracranial Malignant Melanoma
Uveal Melanoma, with Metastases
Warburg Micro Syndrome