Pennsylvania Statewide Independent Living Council
A nonprofit, cross-disability, consumer-controlled organization, the mission of the Pennsylvania Statewide Independent Living Council is to use our collective power and legal mandate to develop and secure public policies that ensure civil rights and expand options for all people with disabilities in all aspects of life.
Independent Living
Independent living, is a philosophy and a worldwide movement of individuals with disabilities working for equal opportunities, self-determination, and self-respect. It stems from the fundamental principle that people with disabilities are entitled to the same civil rights, options and control over choices in their own lives as people without disabilities.
STATE PLAN FOR INDEPENDENT LIVING (SPIL)
We are looking for your input on issues that affect your daily life.
Centers for Independent Living
Centers for Independent Living (CILs) are consumer‑controlled, community‑based, cross‑disability, nonresidential private nonprofit agencies operated by individuals with disabilities, providing an array of independent living services.
We want to know more about what it's like to live as an individual in Pennsylvania who is deaf, hard of hearing, deaf-blind or blind. So, you are invited to tell us your story!
Multiple available days/times, in-person sessions, focused on sharing experiences, hosted by the Pennsylvania Statewide Independent Living Council and the Pennsylvania Office for the Deaf & Hard of Hearing.
Your stories and experiences will help us gain a better understanding of the communities we serve and use your stories in our future planning and advocacy!
When: August 30th from 10am to 1pm or 3:30pm to 5:30pm (add'l sessions will be announced)
Where: In-person at the Giant Community Room (3301 East Trindle Road, Camp Hill)
Accommodations: Cart &b ASL interpreters will be available; tactile interpreters by request. Accommodation requests must be received by August 18th to info@pasilc.org. ... See MoreSee Less
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Comment on Facebook
I warn people not to waste your precious time. Pa SILC baits you in like they’re going to help but they do nothing. They get money to advocate but they just have meetings and pay staff to again do nothing to help. No action. Then you’re vulnerable and your private info is out there. It’s actually abusive to ppl w disabilities and families to be exploited in this manner. I’m sure there must be some grant or money for deaf that they got to waste it. Of course the money should be going to ppl that are deaf and families but the state gives it to providers to waste it instead.
Why? We shared at a public hearing about all of the abuses in the ODP waivers and the violations of labor laws in Pa, civil rights and constitutional rights, olmstead and the criminalizing services by family and arresting family caregivers without due process and pa SILC did nothing to help. What does pa SILC do with all the funding and what do these organizations do with all funding? What can this organization do to change ODP discriminatory regs for people living in their own homes? We have gross institutional bias in Pa which violates olmstead.
What will be done with the information from the listening session? Why go if no action?
Oh and about 800 caregivers we believe mostly family had swat teams break down their door and they were arrested for time card errors. Working 24/7 but only allowed to put four hours a day in time card and were told to block bill by fiscal agent who thrm reports thrm for fraud. It’s a sick abusive system.
PA General Assembly Dept of Labor must investigate the incompetence and negligence of OVR, PA Deaf HOH Council.
Who is going to pay and provide transportation? Deaf blind and deaf special needs have no services because the 1915c waivers are written to NOT provide services Violation of ADA!! Olmstead violations!!
I’m talking about pa SILC. This is a different organization but my point is all these providers get funding and there are ppl on waiting lists. Meanwhile 50:/: or more of dsp caregivers are family and families are discriminated against as are ppl w disabilities. Do you know ODP travel policy? Ppl with disabilities getting services cannot leave the state more than 30 days? That’s civil rights violations. Jeremy Yale said “to keep the money in Pa” when asked why they had this policy. People with disabilities are cash cows for the state and providers. Meanwhile wait lists and families are caring for severly disabled loved ones 365 days a year 24/7 yet paid only 40. Waste. Violations of their own mantra everyday lives. Violations of olmstead because different rules if in your own home or institution. Violations of labor laws. See fact sheet f79. Violations of constitutional rights. How bout these providers do something to really help instead of “listening” sessions.
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We want to know more about what it's like to live as an individual in Pennsylvania who is deaf, hard of hearing, deaf-blind or blind. So, you are invited to come tell us your story!
August 30, 2022, 10:00amGIANT Food StoresWe want to know more about what it’s like to live as an individual in Pennsylvania who is deaf, hard of hearing, deaf-blind or blind. So, you are invited come tell us your story!
Sensory Disability Experience-Sharing Sessions
Multiple available days/times, in-person sessions, focused on sharing your experiences, hosted by the Pennsylvania Statewide Independent Living Council, in collaboration with the Pennsylvania Office for the Deaf & Hard of Hearing.
Your stories & experiences will help us gain a better understanding of the communities we serve and use your stories in our future planning and advocacy!
********
WHEN
Tuesday, August 30th
Session 1: 10am to 1pm
Session 2: 3:30 to 5:30pm
Add’l session dates & times will be announced at a later date.
WHERE
In-person only
GIANT Community Room
3301 East Trindle Road, Camp Hill, PA 17011
ACCOMMODATION
Cart & ASL interpreters will be available; Tactile interpreters by request
Accommodation requests must be received by August 18th to info@pasilc.org ... See MoreSee Less
Comment on Facebook
Sensory Disability Experience-Sharing SessionsAugust 30, 2022, 10:00amGIANT Food StoresWe want to know more about what it’s like to live as an individual in Pennsylvania who is deaf, hard of hearing, deaf-blind or blind. So, you are invited come tell us your story!
Multiple available days/times, in-person sessions, focused on sharing your experiences, hosted by the Pennsylvania Statewide Independent Living Council, in collaboration with the Pennsylvania Office for the Deaf & Hard of Hearing.
Your stories & experiences will help us gain a better understanding of the communities we serve and use your stories in our future planning and advocacy!
********
WHEN
Tuesday, August 30th
Session 1: 10am to 1pm
Session 2: 3:30 to 5:30pm
Add’l session dates & times will be announced at a later date.
WHERE
In-person only
GIANT Community Room
3301 East Trindle Road, Camp Hill, PA 17011
ACCOMMODATION
Cart & ASL interpreters will be available; Tactile interpreters by request
Accommodation requests must be received by August 18th to info@pasilc.org ... See MoreSee Less
Comment on Facebook
"July 26 marked 32 years since the Americans with Disabilities Act, a civil rights law requiring equal opportunity for people with disabilities, was signed by President George H.W. Bush. In the decades since, a lot of positive changes have been made across the Lehigh Valley, advocates and officials said, but there’s still a long way to go." ... See MoreSee Less
On the anniversary of the Americans with Disabilities Act, the Lehigh Valley is more accessible than ever — but not there yet
www.mcall.com
The Americans with Disabilities Act turned 32 recently. Here's what Lehigh Valle...Comment on Facebook
Caregiver shortage threatens college dream of Messiah student with cerebral palsy ... See MoreSee Less
Caregiver shortage threatens college dream of Messiah student with cerebral palsy
www.pennlive.com
Noah Spaulding sees campus life as the doorway to the world.Comment on Facebook
"Thousands flocked to downtown — with about 10,000 watching the fireworks show, according to a New Castle police department count — for the all-day Freedom Fair and Fireworks Festival. The festival was sponsored by Disabilities Options Network, which took over the event in 2017 and was the first held since 2019 due to the pandemic." ... See MoreSee Less
Fireworks festival brings hundreds to downtown, lights up sky
www.ncnewsonline.com
There was food, games, music from The Dorals and even a giant inflatable unicorn...Comment on Facebook